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June 2018 Newsletter

Format QuotePosted on June 29, 2018August 27, 2020Author AdministratorCategories Newsletters

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Our friends at Association for Children with a Dis Our friends at Association for Children with a Disability shared this information which we thought you'd love to know. Lockdowns are so hard on children with disability and their families. As we head into school holidays we can confirm that under the current restrictions the following support is permitted: - More than one adult can go to the playground if your child or children need more than one adult to provide appropriate supervision - Support Workers and others who help care for your child with disability can come to your home - Your child with disability can go to their Support Worker or others for care. Knowing what is possible is such an important part of parenting a child with disability. Thanks so much ASD for highlighting this and making it so much easier to navigate
The ABILiTy Team got together virtually over the w The ABILiTy Team got together virtually over the weekend to give each other some much needed lockdown support. The team discussed all the great things and some of the challenges, this team really is built on friendship & support 🧠❤️
This week we’re highlighting another local legen This week we’re highlighting another local legend out there representing, Tommy Quick, who's just begun an epic bike journey across Australia, to raise awareness about kids stroke and the importance of social inclusion. Tommy has been involved in the HT community for more than ten years now, initially as a participant in our family programs and more recently as a family volunteer. Our Founder, Kate Heine, caught up on Tommy’s new adventure this week, so check out their chat, and get on board with Tommy’s 4 points journey!! www.the4points.org Here is the link to Kate and Tommy's chat; https://us02web.zoom.us/rec/share/9AyWfxwmSB55iRyY0qgv09X7AlkuskrnjC61ViWVqo6tIpfEb-jd_vrUSKXFVgZk.f4KH2Yzu6bkonUHn?startTime=1630899932000 Pic Credit www.the4points.org #ABI #TBI #childhoodstroke #paediatricstroke #BrainInjury #youcantbewhatyoucantsee #HeadsTogetherforABI #livedexperience
Our wonderful team member and super volunteer, Dr Our wonderful team member and super volunteer, Dr Penny Analytis, has been maximising her lockdown time to write a book about the siblings lived experience of brain injury. Building on her PhD research, Family Adaptation after Acquired Brain Injury, Penny has written “The Sibling relationship After Acquired Brain Injury” which brings together research into sibling relationships and ABI, family relationships as well as personal accounts from her research interviews. We love your work Penny, thanks for sharing siblings' voices! Check out her book on https://www.routledge.com/The-Sibling-Relationship-After-Acquired-Brain-Injury-Family-Dynamics-Across/Analytis/p/book/9780367897994 Brain injury impacts every member of the family, and the more we hear each person’s experience, the better we can understand brain injury
Big win for Paralympians - Way to Represent!! A Big win for Paralympians - Way to Represent!! A couple of weeks ago we featured Paralympic athlete Meg Lemon, the 2020 World Champion cyclist who just won a bronze medal! You’re gold medal all the way in our opinion for your commitment to raising awareness about the inequity of cash bonuses for Olympic and Paralympic athletes. Along with many of your fellow athletes, you spoke out about this important issue, and yesterday Prime Minister Scott Morrison announced that the Federal Government will now be providing the same cash bonuses for all Paralympic medal winners! That’s a lot of bonuses, we’ve snagged over 60 medals so far!!! It’s thrilling to see this positive change happening in real time! So well deserved, and a much needed boost to keep driving for an equitable society for people of all abilities. Pic Courtesy of Paralympics Australia facebook. . . . #equalityforallabilities #bethechange #youcantbewhatyoucantsee #abi #tbi #braininjury #tokyoparalympics2021 #headstogetherforabi #meglemon
Heads Together for ABI has partnered up with The E Heads Together for ABI has partnered up with The Entertainment Book as a fantastic fundraising opportunity. https://www.entertainment.com.au/orderbooks/9r67151 Whether it be 25% off at the cinemas, a buy one get one free from your local pub/restaurant, discounts at hotels or even Luna Park, the list goes on! The win-win situation continues, not only will you benefit from great discounts, a percentage of your membership comes straight to us at Heads Together for ABI. So please get involved. And when you are enjoying the that 2 for 1 at 'Krispy Kreme', you'll know you are doing it for a cause! Guilt free delights!
When we think of representation and what’s possi When we think of representation and what’s possible after brain injury no one epitomises this more than Tom Obrien. Tom and his family have been a much loved part of our community for the last 12 years. We are excited to continue to watch all the great things still to come your way Tom x #youcantbewhatyoucantsee #ABI #TBI #HeadsTogetherforABI #LivedExperience #BrainInjury https://youtu.be/dNdjg7RaVj4
Over the weekend, the Heads Together Teens spent t Over the weekend, the Heads Together Teens spent the afternoon catching up and building pillow forts. Even though we didn't quite get to our movie, we still had a wonderful afternoon. Connection is everything. 💙
An important part of what we do as an organisation An important part of what we do as an organisation is start conversations about things that are important to our families and young people impacted by brain injury. Our recent Heads Together Parents Circles of Support conversation in conjunction with Belonging Matters Inc. highlighted the importance of having a vision for our kids future and the need for strong support networks. Our HT community is that and more.
For our last post this week, we want to highlight For our last post this week, we want to highlight one of the most beloved children’s book authors of our time, Roald Dahl. Everyone has a favourite character from his wickedly funny and fantastical tales of friendly giants or tyrannical teachers but what you might not know is that Roald attributes some of his creative genius to a WW2 plane crash which injured the frontal lobe in his brain. This type of injury can often result in disinhibited and sometimes inappropriate behaviour, or in his case outrageously funny, naughty and sometimes downright gross stories! Thank you Roald, not only for your amazing stories, which will live forever, but also for sharing your lived experience to show others that sometimes the worst things in life can open windows of opportunity that you never imagined. Check out the amazing work that Roald continues to posthumously support through the Roald Dahl Foundation. Find out a little more here. https://www.thechildrenstrust.org.uk/brain-injury-information/latest/roald-dahls-revolutionary-work-in-brain-injury Pic courtesy of express.co.uk . . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021 #roalddahlfoundation #creativegeniusswithacquiredbraininjuries
Acquired brain injuries are diverse and unpredicta Acquired brain injuries are diverse and unpredictable and like all humans, no two brain injuries are the same. And while there is no doubt that brain injuries result in huge challenges they can also result in previously undiscovered talents and strengths. Today we highlight two creative genius's whose stories prove this point brilliantly. Jamie Daddo is a well known Melbourne artist whose creative genius was sparked after a serious car accident when he was 18. Jamie’s twin brother and TV personality Andrew said that of all the Daddo brothers, Jamie’s artistic legacy is most likely to be remembered. Jamie and Andrew were featured in a wonderful ABC documentary Artscape-Anatomy Brain where Jamie said “after the accident, painting and poetry was one thing that I could do so differently than anyone I knew.” Jamie’s abstract portraits have been described as raw, intense and generous and Jamie’s outlook on life is a great reminder that it is sometimes our greatest challenges that result in our biggest strengths. “I’ve been to hell and back. It’s been a beautiful journey”. You can read more here. https://www.theage.com.au/national/portrait-of-an-artist-with-insight-for-a-palette-20030616-gdvvtx.html Pic courtesy of ABC.net.au . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021 #jamiedaddo #creativegeniusswithacquiredbraininjuries
Another promising young AFL player whose career wa Another promising young AFL player whose career was cut short by repeated concussions is Jack Frost. Jack played for Collingwood and the Brisbane Lions, but suffered 14 concussions over a 5year period, resulting in debilitating side effects. Like so many young people with brain injury, Jack has battled through his recovery and last year signed on as Hawthorn Football Club’s AFL Wheelchair coach. We salute you Jack for your strength and perseverance and wish you the best in your new coaching role. Link to article https://www.foxsports.com.au/afl/afl-2020-collingwood-magpies-jack-frost-opens-up-on-concussion-battle/news-story/ceba7138762bdbb503aa5fc79da31f52 Pic courtesy of wwos.nine.com.au . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021
Western Bulldogs superstar Liam Picken, who sustai Western Bulldogs superstar Liam Picken, who sustained a number of serious concussions causing him to retire early in 2019, has gone on to become a key advocate for better management and treatment of concussion related brain injuries. Not only has Liam dedicated his post game career to raising awareness of sports related concussion, he has also made the decision to posthumously donate his brain to furthering research into CTE, Chronic Traumatic Encephalopathy, the condition that has been affecting so many sports people all over the world. Amazing work Liam, kicking goals on and off the field. Listen to Liam’s story on ABC Homespun https://www.facebook.com/watch/?extid=SEO----&v=824765968110785 Pic Courtesy of wwos.nine.com.au . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021
Caleb Rixon is man of many talents, a gifted actor Caleb Rixon is man of many talents, a gifted actor and singer and now a professional disruptor of what he calls “the isolation industry”. He has used his lived experience of being a stroke survivor to create a global community called Genyus Network, of people who have experienced trauma. Together their one vision is to create a world where trauma survivors are empowered, emotionally resilient and connected. This movement driven by Caleb, has created some incredibly positive change in the areas of research and rehabilitation, and Heads Together are so proud to be partnering Caleb and Genyus Network. Sharing the message that living wisdom is the true medicine and people with lived experience are the true experts. We thank you for creating a safe space for so many others to find their voice and share the one vision. You are truly the hero of your own story. View here to see more. https://www.facebook.com/watch/?ref=search&v=678830266170928&external_log_id=0d6d92d0-d025-4a9d-95f3-573424fac646&q=caleb%20rixon%20stroke%20insight%20sbs Pic courtesy of www.genyusnetwork.com . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021 #genyusnetwork #CalebRixon #DisruptTheIsolationIndustry
Closer to home, we’d like to put the spotlight o Closer to home, we’d like to put the spotlight on Luke Webb, a wonderful young actor and ambassador for the Stroke Foundation. Luke was an up and coming young actor, appearing in a number of blockbuster movies before the age of 20, when he suffered a serious stroke as the result of a DVT, deep vein thrombosis. Luke has worked his way to an amazing recovery, like so many young stroke survivors, and has returned to his acting career appearing most recently in the Aussie drama Love Child and in the incredibly popular Modern Family series in the US. Like Emilia, Luke has used both his lived experience and his public profile to raise awareness of childhood stroke, spearheading campaigns for better paediatric stroke research funding and treatment. Paediatric stroke affects more than 20,000 children in Australia every year and yet most people still believe that stroke only happens to elderly people. Thank you Luke for your dedication to this incredibly important cause. Pic courtesy of Division1 Management . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021 #lukewebb #strokefoundation
Today is all about Actor/Activists, both local and Today is all about Actor/Activists, both local and abroad, and we hope that their stories will inspire all those kids out there living with brain injury, dreaming about seeing themselves onscreen one day. Actor Emilia Clarke, best known for her fabulously fierce role as Khaleesi, Mother of Dragons in the Game of Thrones series, sustained a brain injury in 2011, as the result of an arteriovenous malformation or AVM, which can cause serious brain bleeding. Since her injury, Emilia has not only returned to the big screen becoming one of the most sought after actors of her generation, but she has used her lived experience of brain injury to raise awareness and funds by setting up her own foundation SameYou www.sameyou.org/ dedicated to developing better recovery treatment for survivors of stroke and brain injury. Emilia, we love your passion on and off the screen and thank you for sharing your story so courageously to shine a light on brain injury. Read more about her story here; https://www.newyorker.com/culture/personal-history/emilia-clarke-a-battle-for-my-life-brain-aneurysm-surgery-game-of-thrones Pics courtesy of Same You website. https://www.sameyou.org/ . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021 #sameyou #emiliaclarke
Hey everyone, thanks so much for getting behind ou Hey everyone, thanks so much for getting behind our campaign, the response has been fantastic. I know that representation is a complicated and sometimes difficult topic to discuss but I also think that everyone deserves to see themselves and their lived experience in public figures. That lets face it, we all watch, like, follow etc. I think that young people with acquired brain injuries deserve more public representation, people who can blaze a trail of opportunity, and show that it is their lived experience that makes them stronger, wiser and more resilient, and by doing so empower others. I will be discussing the topic of representation on JoyFM tomorrow just after 4pm, and am so excited to be joined by Caleb Rixon, Founder of Genyus Network, who is one of those trailblazers. So join me and Caleb on 94.9FM and be part of the representation conversation!! . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021 #joyfm #genyusnetwork
Continuing on our Amazing Athletes theme, we wante Continuing on our Amazing Athletes theme, we wanted to highlight two Aussie Parolympians who are representing people with acquired brain injuries next week at the Tokyo Parolympic games. Meg Lemon, a cyclist who sustained her ABI in a bike accident, and Jasmine Greenwood, our youngest athlete who had a stroke as a child, and will be going for gold in the pool. We wish you the very best of luck! We salute all of our incredible parolympians and will be cheering them on as they continue to smash through the barriers next week! And too all the young people out there living with brain injury, we want to acknowledge how amazing you all are for smashing through the barriers you've faced, we know that you don't have to win gold to be a champion but its still pretty cool to cheer for someone who has shared your experience of ABI!! Pics courtesy of Paralympics Australia Website . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021
To be committed to a sport at elite levels takes g To be committed to a sport at elite levels takes grit and determination....and these two amazing athletes have those attributes in spades. Richael Timothy came back from an acquired brain injury from medical complications in her early 20s to go on and compete in the paracycle events around the world representing her native Ireland, and soon to be representing Australia at the Tokyo Paralympics. And every Aussie must now know the inspirational story of Owen Wright who recovered from a surfing accident causing a traumatic brain injury in 2015, and went on to win Bronze for Australia in the first Surfing competition of the Olympic games last month. To all those budding sportspeople out there with an ABI...go for gold. #YouCantBeWhatYouCantSee Pic credit Owen Wright & Richael Timothy Facebook https://www.facebook.com/RealOwenWright/posts/365588954935517 https://sportforbusiness.com/from-acquired-brain-injury-to-the-paralympic-velodrome/ . . . #YouCantBeWhatYouCantSee #ABI #TBI #BrainInjury #HeadsTogetherforABI #LivedExperience #BrainInjuryAwarenessWeek2021
It’s #BrainInjuryAwarenessWeek2021 & we are shin It’s #BrainInjuryAwarenessWeek2021 & we are shining a light on the topic of representation or as we are calling it #YouCantBeWhatYouCantSee Young people with acquired brain injuries have few public figures to look to for inspiration & representation. We know at Heads Together, there are so many incredible young people living with brain injuries but too often they feel judged and limited by misconceptions about who they are and what they can achieve. So this week we are going to share stories of people who have achieved great things in many different fields, writers, sports people, actors and politicians. People who have had the courage to share openly about their experience with acquired brain injury. We hope to give courage & inspiration to others who are reaching for their dreams and seeing that conquering our most difficult challenges can create our most valuable strengths and abilities. . . #YouCantBeWhatYouCantSee #ABI #TBI #braininjury #headstogether #headstogetherforABI #BIAW #braininjuryawarenessweek2021
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